Alexandra L. Terrill

Development of a resilience item bank and short forms.

Rehabilitation Psychology · 2020 · 25 citations

PURPOSE: The purpose of this study was to develop a publicly available, psychometrically sound item bank and short forms for measuring resilience in any population, but especially resilience in individuals with chronic medical conditions or long-term disability. RESEARCH METHODS: A panel of 9 experts including disability researchers, clinical psychologists, and health outcomes researchers developed a definition of resilience that guided item development. The rigorous methodology used focus group…

Family caregiver experiences and needs across health conditions, relationships, and the lifespan: a Qualitative analysis

International Journal of Qualitative Studies on Health and Well-Being · 2024-01-11 · 24 citations

PURPOSE: The purpose of this study was to understand the lived experiences of family caregivers who provide care to individuals across a broad range of ages, caregiving relationships, and health conditions and/or disabilities. Family caregiver research is typically siloed by health condition or by caregiving relationship, leaving gaps in understanding similarities and differences among caregivers. METHODS: = 26) caring for an individual with a long-term disability and/or health condition(s). We…

Association of mindfulness to resilience, anxiety, and depressive symptoms after spinal cord injury—a correlational study

Spinal Cord Series and Cases · 2020 · 11 citations

Evaluating the Efficacy of Time for Living and Caring: An Online Intervention to Support Dementia Caregivers’ Use of Respite

Innovation in Aging · 2024-04-26 · 8 citations

Abstract Background and Objectives Respite, defined as time away from caregiving, is the most requested type of caregiver support. Time for Living and Caring (TLC) is a virtual coaching “app” that helps caregivers schedule and plan their respite time-use. The objectives of this analysis are: (1) to assess the efficacy of the TLC intervention on respite time-use and on caregiver well-being and (2) to identify the key features of the intervention that serve as the likely mechanism of action. Resea…

Using Digital Inequality Framework to Evaluate a Technology-Delivered Intervention for Caregivers: Age, Education, and Computer Proficiency

Journal of Aging and Health · 2024-02-07 · 5 citations

Objectives: Using “digital inequality” as a conceptual framework, this study evaluates the feasibility and usability of a technology-delivered intervention (an “app”) for Alzheimer’s and related dementia family caregivers. Time for Living and Caring (TLC) is an on-line intervention that provides virtual coaching and self-administered education and resources. Methods: A sample of family caregivers ( n = 163) used the tool for 16 weeks, which included completing the Computer Proficiency Questionna…